This year has been so different compared to last year. We spent our holidays in the NICU for 2012. This year, we have a one year old who is healthy, happy and absolutely perfect!!! So much to update on but for now I’ll leave you with some pictures.
Me and Matty at his first 49er game
Birthday photo shoot
Just the 3 of us!
1st picture with Santa
Jerry loves Matty
Happy Holidays from our family to yours!!!
Hello again!!! It’s been a long time. Wish I had a good excuse but the days have just been flying by. My little family of three has been great!! Matty seriously is our miracle baby and keeps surprising us and his doctors everyday. He is now 8 months old; 5 1/2 months corrected.
On Wednesday, Matty had a big appointment with the high risk infant clinic. He did so good. Scored at a six month level for cognitive. Five month level for language and a four month level for gross motor skills. He just started rolling over about a week ago and is practicing his sitting skills. So yeah, he is developmentally behind but everyday he is making progress. He still isn’t able to fully hold his head up when on his tummy but his neck muscles are getting stronger. We knew he would be behind in his milestones due to his prematurity but he also has to work extra hard due to the after effects of his brain bleeds. His head grew at a faster rate then most babies. So he has a big ol’ noggin on a little body (he is growing into it though).
His weight has been a slow process. He isn’t gaining as much as we would like but at least he’s gaining. He’s not even on the growth curve they use. At eight months old, he only weighs 12 pounds 5 ounces (as of Wednesday) but his doctors aren’t too concerned about it yet. They say he has til the age of two to hopefully catch up to other children in his age group. He was only two pounds when he was born so twelve pounds seems gigantic to us! The good news, is that we finally got the okay to start him on solids so hopefully that will pack on some pounds. He tried oatmeal cereal for the first time yesterday and he loves it!! We have to take Matty in every 2-4 weeks for weight checks so I hope we will see a pretty good jump the next time we go in.
I know I say this every time BUT I plan on writing more. This started off as a infertility blog about a lesbian couple trying to have a baby. Our life has changed. We are now mommies to an amazing, little boy that has overcome so many obstacles but he still has a long road ahead of him. I want to share Matty’s story and hopefully help another family that is in the same situation. I want them to know that miracles do in fact happen and these little babys are strong, resilient and not to count them out. I’ll write more about Matty’s hospital stay because I sort of glossed over it in my other posts but its a big part of his story. It was just too hard to write about it then. So I hope you will all continue following our journey!!
I’m going to put up a bunch of pictures of Matty in a protected post. So if you don’t have the password yet and would like it email Claudia at firstname.lastname@example.org.
Matty is finally home with us!!!
He came home Friday, March 1, which also happens to be Claud’s birthday. Best present ever!
We are quickly getting the hang of things. Matty is such a good baby though so he doesn’t make it really hard. He cries when hungry or has a dirty diaper basically. He doesn’t mind noise since he’s so used to having nurses and doctors around him all the time. And his schedule has been the same for 3 months now so no guessing or trial and error on our parts.
Sleep has been ok. We are terrified of all three of us sleeping at the same time so I go to sleep for about 6 hours at night and Claud stays with Matty. She’ll then wake me up to take over for the next 6 hours and once she’s awake we are all together for the day.
He has a health home nurse coming to check up on him today and his one week pediatrician appointment on the 8th.
Just wanted to give a quick update. More later!
The anticipated day that all moms to be look forward to with fear, anxiety, nervousness, impatience and happiness.
I don’t know why this day meant so much to me. Just a day. Probably a day that Matty wouldn’t have even been born on. But yet it’s so much more. It’s one of the first things that tied us to Matty and our pregnancy. It made it real. We had a day to countdown too. A day to look forward too. A day that would finally bring us what we’ve been waiting for.
It seemed so far away then. Back in July when we finally got our positive. It seemed far away in December when Matty entered the world. And now it’s here. Just like that.
Matty is now 11 weeks old but adjusted age only ONE day old. Crazy!!
I thought I would be sad today but instead I’m grateful. I get to stare at my handsome son as he gives me his huge, gummy smile and all is right in our little world.
First, thank you all for all your kind comments on my last post, Should Have. The support we get from this community is overwhelming.
Matty is continuing to get stronger. He is almost off of the nasal cannulas which means no oxygen! We can’t wait for that day but still very terrified of it.
The one issue we do seem to be having is feeding. It’s been a slow process and we can only hope it clicks soon. If not, than Matty will be coming on with his feeding tube. Not uncommon for preemies but still not something that I want to happen. Matty has no problem sucking. They just don’t know how strong his swallow reflex is. We’ve been slowly introducing breast feeding. He latches on well (with a nipple shield) and he gets milk out. We don’t know how much he actually swallows though. The good thing is that he doesn’t choke and his vitals stay stable will doing this. I want him to get this down so badly. I don’t want him to stay on the feeding tube. And for a selfish reason also. I’m so tired of pumping!!! Nine weeks of exclusive pumping. I hate it, my boobs hate it and I think it’s making me little crazy.
Other than that not much going on. And in Matty’s world that is a wonderful thing. We don’t think he’s coming home in February though.😦 Hopefully early March.
In other news, we finally had our cowboy themed baby shower for our Lil’ Buckaroo. We had an awesome time and it was nice to feel normal for a day. Sort of felt like our old selfs but I couldn’t help feel extremely guilty about having fun while Matty was by himself in his hospital crib. It was good to see everyone though. Claudia and I have been secluded from the rest of the world and it’s been months since I’ve seen most of my family. And we got a bunch of gifts. Diapers, Tommee Tippee bottles, swing, high chair, bouncy chair, bath tub, Boppy, baby carrier, bassinet, and a bunch of blankets, clothes and other things. We still need a car seat, stroller, diaper bag, baby monitor and rocking chair though. Still a lot of big, expensive things. We will get them slowly.
Now for some pictures!